Perth family wins funding dispute with National Disability Insurance Agency for daughter with Rett Syndrome
A Perth family struggling to fund their young child has triumphed after a review and federal intervention.
The Green family is currently building a new home and had been seeking money for a hoist, chair and changing table to support 10-year-old daughter Brooke, who has Rett Syndrome.
WATCH THE VIDEO ABOVE: The Perth family raises funds for a vital hoist in their home
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Brooke requires 24-hour care, but the National Disability Insurance Agency initially declined to offer the $20,000 required.
7NEWS inquiries to NDIS Secretary Bill Shorten resulted in an investigation and the money was granted along with an apology.
Brooke’s overjoyed mother, Shannon Green, said it was “fantastic” that a “reasonable outcome” had been achieved.
Rett Syndrome is a rare genetic condition that limits Brooke’s movement and ability to speak.
It was revealed on Monday that her parents had been forced to fight tooth and nail to secure funding for the basics of their new home.
The Greens have been inundated with calls for support from families in similar situations, vendors and even strangers offering help.
After months of COVID delays and funding frustrations, the family is hoping to move into their new home in September.
They say it will meet all of Brooke’s needs now and in the future.
“It’s not just a home, it’s the opening of a whole new lifestyle,” Mrs Green said.
https://7news.com.au/news/public-health/perth-family-wins-funding-fight-with-national-disability-insurance-agency-for-daughter-with-rett-syndrome-c-9613386 Perth family wins funding dispute with National Disability Insurance Agency for daughter with Rett Syndrome